In Sri Lanka, one woman is determined to change how people see Endometriosis.
Rashani Meegama, a sufferer of 4th stage endometriosis and a lawyer by profession, launched the Endometriosis Support and Awareness Foundation (ESAF) in 2021 with a mission to create awareness of endometriosis and advocate for early diagnosis and lifestyle support.
Endometriosis is a chronic disorder where tissue similar to the lining of the uterus grows outside in other organs.
During menstruation, abnormal tissue deposited in other organs mimics uterine lining tissue causing chronic inflammation, bleeding, and severe pain, causing scar tissue to form.
A range of symptoms include excruciating menstrual pain, heavy periods, chronic fatigue, debilitating migraines, and irritable bowel syndrome (IBS).
Endometriosis can also lead to fertility problems and affect a woman's mental health and quality of life.
The constant pain and discomfort can impact everyday activities, including work, social life, and relationships.
The lack of understanding and awareness of the condition can make managing it even more challenging.
ESAF's programs and services include awareness programs, emotional support, and advocacy efforts to destigmatize endometriosis.
The foundation aims to educate society at every level, from school teachers and nurses to family physicians and employers.
By capturing the right target groups, the foundation hopes to make a significant impact towards driving early diagnosis and providing the right moral support to endometriosis victims.
ESAF has already made a difference in the lives of many endometriosis sufferers.
The foundation has connected with women in remote areas of the country to help them find the right doctors and treatment options.
With accurate knowledge and information, Rashani believes endometriosis sufferers can lead a better quality of life.
She says, "Endometriosis cannot be wiped away, but accurate knowledge and information can make the biggest difference in an endo woman’s quality of life.
Knowledge is power, and ESAF will be the platform to empower you in your journey with endometriosis."
However, ESAF faces several challenges in its mission.
These include destigmatizing the taboo on endometriosis and menstrual health, lack of knowledge and attention at primary healthcare and societal levels, and funding to drive awareness.
The media and the general public can also be crucial in raising awareness for endometriosis and ESAF's work.
The foundation welcomes opportunities to host awareness events in workplaces, medical clinics, and other public places.
The media can help also carry the voice in all traditional and digital media avenues throughout the year.
With the launch of ESAF, Rashani Meegama hopes to break the silence and create awareness and support for endometriosis sufferers in Sri Lanka.
ESAF aims to empower women to take control of their journey with endometriosis through accurate knowledge and information, emotional support, and advocacy efforts.
For more information, please visit the Endometriosis Foundation's website http://esafsrilanka.com/.